Virtual Dystonia Zoo Day is September 12, 2020 - Patients and Families Unite Online to Raise Awareness and Research Funds for Little-Known Brain Disorder
The Dystonia Medical Research Foundation (DMRF) has transitioned its popular local zoo walks into Virtual Dystonia Zoo Day on Saturday, September 12, 2020. The dystonia community is uniting online for a national day of action to boost dystonia awareness and raise funds for urgently-needed medical research.
“DMRF is bringing the fun and energy of our Dystonia Zoo Walks to a virtual stage so people and families from all over the country can join together in the fight for a cure,”
This is a virtual event, where anyone can log in and view or participate in a virtual fundraiser event that will benefit the Dystonia Research Foundation.
Virtual Dystonia Zoo Day will begin with a livestreamed kick-off at 11:00 AM Central Time (USA). Scheduled sessions throughout the day will include a live zoo keeper chat, a behind-the-scenes demonstration with dystonia investigators, an adapted yoga and mindfulness class, Q&A with movement disorder experts, children’s activities, and more.
Sign-up for the event is free and participants can support the DMRF by purchasing an event t-shirt, making a donation, or becoming a “ZooGooder” sponsor. 100% of donations (up to $50,000) will be matched a generous anonymous donor.
Dystonia is a chronic, often disabling, brain disorder marked by extreme, involuntary muscle contractions that cause abnormal body movements and postures. Common signs include abnormal movements of the head and neck, excessive blinking, a breathy or choking voice, hand cramps, or a twisted foot. Because dystonia is not better known, symptoms are often mistaken for mental illness, intoxication, or poor social skills. Dystonia impacts people of all ages and backgrounds. There is currently no cure, and though treatments exist there is no single therapy that benefits even a majority of patients.