Infant born with Apert syndrome needs surgery to help him lead a normal life, and Galt residents are stepping up to help his parents with the costs
Coming together for Mason Fluty
Mason Fluty, a 6-month-old baby with Apert syndrome, sucks on
his thumb on Saturday, Jan. 28, 2012. Apert syndrome is a rare
chromosomal disorder that causes the bones of the skull to fuse
together early. It can also cause fingers and toes to become webbed
or fused together.
Coming together for Mason Fluty
Images on a television capture Mason Fluty's attention while his
mother, Casey Freitas, discusses Apert syndrome on Saturday, Jan.
- Fundraisers for Mason Fluty
Feb. 9: The New Men’s Club will host a February
lunch at the Estrellita Hall from 11:30 a.m. to 2:30 p.m. The
Estrellita Hall is located at 415 C St. in Galt. There will be a
$20 donation for lunch, which includes a hosted bar. You must be 21
or older to attend. A raffle will also take place. For lunch
information, contact Frank Duwel at 209-747-1524. To donate raffle
prizes, contact Suzie Hohsfield at 209-251-9160.
Feb. 18: A tri-tip dinner, dance and raffle
will be held at the Herald Barn on Feb. 18 starting at 5:30 p.m.
Tickets are $20 for adults or $10 for children. For tickets,
contact Freitas at email@example.com or call 775-720-1013.
The Mason Fluty Trust has been set up at Union Bank for
donations. Those who would like to help can go to Mason’s website,
www.masonfluty.com, and click the “Donate” link to contribute
through PayPal. Checks can also be mailed to Mason Fluty Trust, c/o
Suzie Hohsfield, P.O. Box 1474, Galt, CA 95632.
- Mason Fluty at a glance
Born on July 8, 2011 at Dameron Hospital, Mason Fluty is the
youngest of three boys. His older brothers are Jeremy Freitas, 8,
and Brody Freitas, 4. Four hours after he was born, Fluty was
transported to UC San Francisco, where he stayed in the neo-natal
intensive care unit for one month before he was allowed to go home.
In November, Fluty had his first major skull surgery. Until he is
an adult, Fluty will most likely have between 20 and 50 surgeries
to ensure that his bones grow properly and that he remains
- More on Apert syndrome
Apert syndrome is inherited in an autosomal dominant pattern,
which means one copy of the altered gene in each cell is sufficient
to cause the disorder. Almost all cases of Apert syndrome result
from new mutations in the gene, and occur in people with no history
of the disorder in their family. Individuals with Apert syndrome,
however, can pass along the condition to the next generation.
Many of the characteristic facial features of Apert syndrome
result from the premature fusion of the skull bones. The head is
unable to grow normally, which leads to a sunken appearance in the
middle of the face, bulging and wide-set eyes, a beaked nose and an
underdeveloped upper jaw leading to crowded teeth and other dental
problems. Shallow eye sockets can cause vision problems. Early
fusion of the skull bones can also affects the development of the
brain, which can potentially disrupt intellectual development.
Individuals with Apert syndrome have webbed or fused fingers and
toes. The severity of the fusion varies; at a minimum, three digits
on each hand and foot are fused together. In the most severe cases,
all of the fingers and toes are fused. Less commonly, people with
this condition may have extra fingers or toes (polydactyly).
— Source: ghr.nlm.nih.gov
Posted: Monday, January 30, 2012 12:00 am
Mason Fluty gurgled as his wide, blue eyes focused intently on a
swirl of brightly colored images racing across the television
screen at his home in Galt.
At six months old, Fluty’s attention is grabbed by almost
anything that moves. The world is new to him, and yet for someone
so young, he has already endured so much.
Monday, January 30, 2012 12:00 am.